Monday, May 27, 2013

My Canadian friends

I wanted to let everyone know about Bryan, I met his mom thru this blog and Facebook ~1mos ago.  He is 17 and recently diagnosed with bronchiolitis obliterans.  They live in Canada and are helping to promote organ donation with my t-shirts! The response has been amazing!
I cannot get the flyer to upload but please remember to pray for Bryan, his mom Kirstie, and their family as they are battling this scary disease and the unknown which is in my opinion the most difficult!

So much support!!!!

 I just wanted to say how thankful I am for my family and friends.  There has been such an outpouring of support for me and my family!
I designed T-shirts to promote organ donation and my work -Grand Valley Medical Specialists had T-shirt Tuesdays in April (National Organ Donation Month).
One of my co-workers (Melissa) brought her dear daughter in Allison.  Allison is 8yrs old and made duct tape bracelets to sell and gave me her earnings.  I was so moved by this random act of kindness, I thought about Allison and her pure sweet spirit for days to follow.
Here's Allison:

Here is just a sampling of some of my co-workers sporting their T-shirts:

I met Rachael Rasikas ~5mos ago. Her dad is one of the docs I work with. She has an awesome blog and wrote on me. Please ck it out, she is also going to be running this Sat 6-1 with her dad, trying to raise awareness and taking donations.
She has great recipes too. :)
On May 18, Forest Hills Northern HS had a baseball tournament and they helped support my family and I that day.  Eric and Ryan Endres were batboys--Ryan was a terrific help to Eric and they became fast friends that day.

FH Northern won the baseball tournament! Great job guys and we had a great time meeting everyone that day.
Words cannot express how much I appreciate all everyone is doing for me. In a world where you hear so much distressing news, know that there is still so much goodness and love.

Sunday, May 5, 2013

Had some follow-up...

This past Monday, Greg and I traveled to Wisconsin for routine follow-up.  Once you are listed at a center you need routine testing and follow-up.  Some of the testing can affect ones score. Everything is stable currently.  U of W transplant center seems to be a well oiled machine and that brings me some comfort in a very uncomfortable situation.
The waiting can be excruciating, especially as the weather is getting nicer and I would love to be able to travel or plan a trip.  My life feels like it is on hold, will perfectly matched healthy lungs come my way?? When?? These are questions I do not know but they go thru my mind many times a day.  Then of course doubt starts to creep in, it's never going to happen.  But then I remind myself there is The One that is greater than all of us, He is in control and His timing is perfect.
It is a daily battle, please continue to pray for perfectly matched, healthy lungs and never take a day for granted.