Summer is here, its warm, vacations are being planned, travel is happening and I can't go far.
Since I never know when the call is going to come and I need to get to my plane if WI calls within a hour that puts a huge restriction on me and my family.
AAAAHHHHHHHHHHHHHHH, I want to go somewhere!!!!
Even though it hasn't been too long since I've been listed I sometimes feel discouraged that the call will never come. I just want to put the transplant past me and begin to live again. I will never have a carefree life again but at least it won't be in limbo like it is right now.
So, please never take for granted the ability to jump in a car and drive for hours to a fun location.
I'm especially bummed we can't do our annual camping retreat --sorry Mehgan and Scoot!
Anyone up for camping in my backyard? :)
Thanks for everyone viewing my video and showing your support--it was very personal and I'm grateful for your continued support.
Autoimmune Bronchiolitis Obliterans, Lung Transplant journey,Joyce Jensen
Saturday, June 22, 2013
Monday, June 17, 2013
Breathe Event 5-31-13
The first fundraiser that my friends coordinated was aptly titled, "Breathe". My friend Lisa aka Stuursy headed this one up with the help of others. It was a great night and Greg and I were truly overwhelmed by the love and generosity that was shown that night.
It was an emotional night for me, I don't like to be the center of attention and telling my story publicly (face to face) was very difficult.
I have thrown aside my need for privacy to bring organ donation and the importance of this to the forefront.
THANK YOU TO ALL WHO ATTENDED, DONATED, COORDINATED, VOLUNTEERED, and most of all for showing LOVE.
Here are some pics:
It was an emotional night for me, I don't like to be the center of attention and telling my story publicly (face to face) was very difficult.
I have thrown aside my need for privacy to bring organ donation and the importance of this to the forefront.
THANK YOU TO ALL WHO ATTENDED, DONATED, COORDINATED, VOLUNTEERED, and most of all for showing LOVE.
Here are some pics:
Here's a video that Matt Trubac with TruVision created for the night.
- THANK YOU FROM THE BOTTOM OF MY HEART!!!!
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